Wilson Disease Programs & Research
The Wilson Disease Association supports and provides information on Wilson disease research, studies and advocacy initiatives.
Market Research Survey
February, 2020
A market research study is seeking individuals with Wilson's Disease to participate in a 60-minute telephone interview about their treatment experiences. The feedback provided will be used to help understand where there is still need for improvement in Wilson's Disease treatment from the patient perspective. The interviews will also include discussion of a hypothetical new treatment option to understand if there is a fit between what the treatment may be able to offer and the needs in Wilson's Disease. The hypothesized treatment is not currently in clinical development.
If you or someone you care for has been diagnosed with Wilson's Disease you may be eligible to participate. Those who qualify and complete the interview will receive $100 for their time and participation. All information and responses will remain confidential.
To see if you qualify or to get more information please fill out this simple form: https://forms.gle/3jxnsTEV3CNf3GjS7
If you have questions or want more information you may also contact Erin M. at This email address is being protected from spambots. You need JavaScript enabled to view it. or 202-350-0933.
