Here is a listing of individuals who can offer support and information to those living with Wilson disease and their families. If you are willing to offer support to those in your area, please contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.
Argentina
Dadour V. Dadourian
Adresss: 14 de Julio 1526
Buenos Aries (CP: C1430ENB), Argentina
Home Phone: +54 (11) 4552-8556
Cell Phone: +54 (911) 5577-7293
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Australia
Dalia Mikha
Fax: +61 (03) 9359 4980
TTY (only AU): 133677 + (03) 93594980
Susan Kuiper
Phone: +61 (0)458655029
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Belinda Starr
Phone: +61 (0) 429857445
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Austria
Morbus Wilson Selbsthilfegrouppe
C/O Susanne Danziger
Cumberlandtstr. 12
A-1140 Vienna, Austria
Phone/Fax: + 43 (1) 894 27 19
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: www.morbus-wilson.at
Brazil
Associacaio Brasileira dos doentes de Wilson
Sonia Knopf / Maria Aparecida Mesquita Ribeiror
Haddock Lobo, 250 – ap. 305
CEP 01414-000
Brazil
Phone: (55-11) 3214-5520
Fax: (55-11) 3824-7666
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Lucio Mazza
Av. Brigadeiro Luis Antonio, 2791 apto 112
01401-000, Sao Paulo, SP Brazil
Phone: 5511-3057-1572
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Bulgaria
Bulgarian Association Wilson's Disease (BAWD)
Ivelina Ivanova
Sofijski geroj Str., bl.116, ent.A, ap. 6
Sofia 1612
Mob: +359 (0) 897 99 35 65
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: www.wilsonbg.org
Canada
Jean Perog
#34- 1901 Maxwell Ave
Merritt, British Columbia V1K 1L9
Canada
Phone: (250) 315-1832
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Darlene T. Burton
5 Woodbury Drive
Dartmouth, Nova Scotia
B2V 2R6
1-902-462-3789
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
China
China:
Sandra Tan
phone: 86-13666516055
email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Costa Rica
Ms. Carolina Alfaro Jimenez
Urb. La Estrella, casa 40-A
Detras de Tica Linda,
Frente a la Fosforera
Heredia
Phone: (506)815-75-65
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Croatia
Ivana Pijevic
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Denmark
Wilson Disease Patient Association
Lisbet Ottesen, President
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: www.wilsons.dk
Egypt
Sameh Fouad
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Cell Phone: 0020110577700
Skype: Thsales135
Germany
Wilson Disease Organization
Morbus Wilson e.V.
Geschaftsstelle
Meraner Strabe 17
D-83024 Rosenheim
Germany
Phone: +39 8031 249230
Fax: +49 8031 43876
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: www.morbus-wilson.de
Stefan Sandler
Elias-Eller-Str. 146
D-42369 Wuppertal
Germany
Phone: +49 202 2822 402
Fax: +49 202 2822-445
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Beate Rasp
Verein Morbus Wilson e.V.
Leiblstraße 2
83024 Rosenheim
Tel. : +49 (0)8031-249230
Fax.: +49 (0)8031-43876
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.">This email address is being protected from spambots. You need JavaScript enabled to view it.
Web: http://www.morbus-wilson.de/">www.morbus-wilson.de
India
Dr. D.P. Pande, Ph.D., President, WISDOM
Voice mail / Phone: 91-22-2559 5515 (3:00 – 4:00 p.m.) or 2557 2947 (8:00 – 9:00 p.m.)
Email patient support: This email address is being protected from spambots. You need JavaScript enabled to view it.
Email research collaborations: This email address is being protected from spambots. You need JavaScript enabled to view it.
Dhawalgiri 17A
Anushakti Nagar PO
Mumbai 400094
India
Dr. Ashish Sabharwal
B-70, Greenwood City
Sector 45, Gurgaon
HARYANA -122001
Phone: 91-124-4223330
Cell: 91-9811155001
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
E-mail: This email address is being protected from spambots. You need JavaScript enabled to view it.
Clinics for Wilson's Disease Patients:
Monday, Wednesday and Friday: (4:00 p.m. to 6:00 p.m.)
For appointments, phone: 91-22- 24222160 (after 4 pm)
Dr. Aabha Nagral,
Consultant Adult and Pediatric Hepatologist
O-18, Bhavna Building 2nd floor
Veer Savarkar Road
Prabhadevi Clinic
Mumbai-400025
India
DIP SHROT
contact : 7209295501 (priority)
7209891734
address : q.no. 33/1/5, chhota govindpur,jamshedpur,jharkhand,india.
facebook : https://www.facebook.com/dip.shrot.50
Republic of Moldova
Natalie Vozian
B-dul. Decebal 82/2, ap. 123
MD-2038 Chisinau
Republic of Moldova
Phone: +373 22 530290
Mobile: +373 69 372638
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Pakistan
Sanam Noor
B/17 Jason VIP Apptts.
Boat Basin, Clifton, Karachi
Sindh, Pakistan
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Irfana Jabeen Khan
Karachi, Pakistan
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Mobile: 021 03369209203
Phillipines
Rosario Vilma C. Dee
066 Sto. Nino Street, Carmencita Village,
Talon 3, Las Pinas City, Philippines 1701
Cell Phone : (632)9175563814
Landline Phone: (632) 8-8020337
email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Puerto Rico
Daniel Diaz Rubayo DMD
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
787-948-9386 (personal cellphone number)
San Juan, Puerto Rico
Romania
Adela Sandler
Elias-Eller-Str. 146
D-42369 Wuppertal
Germany
Phone: +49 202 2986437
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Monica Toth
Str. Nucului nr. 13, bloc. B5, ap.6
551112 Medias Romania
Phone: +40 269 845136
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: www.wda-romania.org
South Africa
Pauline Castellan
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
United Kingdom
Linda Hart
36 Audley Drive
Beeston, Nottingham
NG92SF
Phone: 0115 8498803
Email: This email address is being protected from spambots. You need JavaScript enabled to view it. and This email address is being protected from spambots. You need JavaScript enabled to view it.
Mrs. Valerie Wheater
(also for information regarding genealogy)
38 Grantchester Road, Cambridge
CB3 9ED
Website: www.wilsonsdisease.org.uk/
United States
Ahsan Ahmad
New Haven, CT 06511
Phone: 630-857-0852
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
George Feldmann
300 S. Bryan Road Unit N-9
Mission, Texas 78572
Phone: 956-519-5296
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Len Pytlak
4202 Bayview Dr
Beaverton, MI 48612
Phone: 989-750-8831
Email: lenpytlak@icloud
Lenore and Russell Sillery
152 Cheese Spring Road
Wilton, CT 06897
Phone: 203-249-7854
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Rob Stall MD
Buffalo, NY
Phone: 716-861-1312
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: http://stallgeriatrics.com/wd/
