I have two adult children that have Wilson's disease. At the time they were diagnosed they were 14 and 17. That was 14 years ago. We had changed from a pediatrician to an internist. They both had lab work after their initial visits for sports physicals. They both had elevated liver enzymes. The doctor called them back for more lab tests and within 10 days called to tell me he was quite certain they had Wilson's disease. Things became challenging after that because of their ages and misinformation. We ended up seeing Dr. Askari at University Of Michigan, and getting the correct information. They are very fortunate to be healthy today.
We have been to a couple Wilson's conferences and understand that not all people with Wilson's are so fortunate. This is the main reason I volunteered to organize a walk in the Chicago area.
