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Stories of warriors touched by Wilson’s Disease and how they fought back by rallying people they know to walk with them and raise money for the patient registry.

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11971928 mediumHi, my name is Amanda Gross and I was diagnosed with Wilson’s Disease at age 19. I was incredibly lucky that a routine blood test revealing elevated liver enzymes sent me on a path to a quick diagnosis. Today, I am asymptomatic and treated with Galzin maintenance therapy.

Wilson Disease is a genetic disease that is terminal unless properly treated. There is no cure (yet). It affects the liver and manifests itself in other parts of the body. This is an incredibly rare illness, and any amount you can give will have a huge impact!

 
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